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What a beautifully written and poignant blog. Thank you for sharing it.
I cared for my late partner through motor neurone disease which is completely different but does involve that sense of slipping away - in her case from loss of speech. I kept a journal through the whole process and it was immensely helpful to me both during and after the illness.
I'm sure your blog will be the same but of course is available to others to help them too.
Ain't technology brilliant?
Thank you for this; very interesting blog. It seems to ease the weight on your shoulders when you can share the burden. Donna C and myself have been married 50 years in December. She is 79, and losing her memory very rapidly now. We had
to give up motorhoming a couple of years ago, because she is no longer comfortable outside her own surroundings. She is very active physically (although just been hospitalised for minor surgery). She knows exactly what is happening to her, which makes it even harder to bear. She confuses our children and grandchildren one with the other and so on. Can't remember who my brothers are. Has difficulty remembering the days of the week/months of the year. Her greatest difficulty seems to be the concepts of time/space. I do all the shopping now 'cos she is not comfortable with money/remembering what to buy where. She is totally autonomous when it comes to personal hygeine/dressing/fashion; which is one blessing. At the moment she has been prescribed a series of Vitamin B supplements, both injections/pills. Can't help feeling they are more of a palliative than anything though.
Anyway, you can always look behind you and find somebody much worse off than yourselves, so we carry on regardless.
saluti,
eddied
______________________________________________________________ We get too soon old, and too late smart.
An old neighbour of mine insisted that Ronald Regan, the Queen and the Pope had all visited her house. Sounds odd but she was right in a way, they were on the front page of her paper that she had delivered.
We stopped her papers and the visitations stopped for a while.
It was so sad to see the fear in her face whenever she got confused about something.
Reminiscence therapy can help, old photo albums, favourite music or movies that have some connection to her can be quite helpful when she is having a "difficult" period.
I used to count my neighbours previous life as 10 years BD. (before dementia) She had excellent recollection of the disco's of the 1960s, her Twist dresses so you don't have to always go as far back as Vera Lynn as they do on the TV.
I feel for you in what must seem like a lonely position at times, but I am sure she makes you laugh out loud as well with the amusing things she says.
Nice blog, keep it going.
______________________________________________________________ Is it better to beg forgiveness than to ask for permission?
She knows exactly what is happening to her, which makes it even harder to bear.
Yes, I agree. Sue has an unusual degree of awareness which does have a real downside - but I also feel that the awareness means she is more 'herself' than she would otherwise be, and this is definitely a plus.
I can see from the blog stats that a fair number of views are coming via motorhomefacts so thanks to everyone who's had a look. This post may bring the blog to the attention of of others who might be interested. Don't forget, you are more than welcome to leave comments which are open to all on the blog.
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Thank you for this; very interesting blog. It seems to ease the weight on your shoulders when you can share the burden. Donna C and myself have been married 50 years in December. She is 79, and losing her memory very rapidly now. We had
so you don't have to always go as far back as Vera Lynn as they do on the TV.
