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Motorhome Facts :: View topic - Tinnitus

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1147310 Post Posted: Tue Nov 01, 2011 3:08 pm Thank this member for this postReply with quote Back To Top

Zebedee Subscriber 13/09/2012 


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Hi Bazzer

This probably won't help you at all, but here goes anyway. Wink

I can't remember when I didn't have it, and it is annoying me now as I type.

It was no problem a minute ago though - until I saw your thread title, "Tinnitus". Shocked

I have managed to "tune it out" and ignore it - until something or someone reminds me of it.

Same with the two collapsing vertebrae. I'm actually in constant pain (altogether please . . . aaaaahhhhhhhh poor chap! Rolling Eyes Laughing ) but it is possible to ignore it for most of the time so it's almost not there.

How do you do that? I'm not quite sure, but I think part of it is sort of "reverse psychosomatic". I was worried and conscious of both problems (at separate times) so went to see the quack, and he reassured me that neither was serious, now't could be done, so stop fretting and live with it.

So I do. Exclamation

Hope it does help you - tinnitus is worse than Mrs Zeb in my lughole . . . and I haven't succeeded in tuning her out!! Shocked Shocked

Dave Very Happy
 
1147326 Post Posted: Tue Nov 01, 2011 3:59 pm Thank this member for this postReply with quote Back To Top

Addie Subscriber 02/07/2012 


Age: 27

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locovan wrote:

http://www.tinnitusremedies.co.uk/
http://tinnitusremedies.net/


Penquin wrote:

http://www.tinnitusformula.com/infocenter/articles/treatments/sbtt.aspx


There is a special place in hell reserved for these people (not you Locovan or Penquin - but the owners of the websites you have posted!).

They are nothing but scams, placebo effect at best. They are some of the best performing schemes on the internet because of how desperate some tinnitus sufferers become for the 'cure'. There may be some useful info but if you look closely the pages are adorned by adverts selling cures, self help books etc. Do not hand over any money for anything tinnitus related - all the best advice is free.

If you must look online stick to the British Tinnitus Association (BTA) and Action On Hearing Loss (formerly RNID).

Sufferers of tinnitus can be some of the most desperate people you will ever meet, it can invade your thoughts, sleep and every waking minute and slowly destroy you if you let it. It is something you couldn't possibly begin to understand without having experienced it for several months and I have had mine for over 10 years. My parents and grandparents love to 'sit in silence' and read. This will always be impossible for me because silence amplifys the sound 100%.

I have seen the top 2 specialists in the UK and we're only just beginning to understand the mechanism for its cause so its well before we can begin to hypothesise a cure.

Bazzer: Have you been checked over to ensure there is nothing causing your tinnitus? I had an MRI which is pretty standard. In some cases a change of diet or a reduction in stimulants (caffeine / nicotine / alcohol) can help and in others treating any depression it causes can indirectly improve your way of dealing with it. I find health wise I need to be on top of my game to fight it - as soon as it slips, it plays up.

I also avoid anywhere loud, using loud machinery, concerts etc. Anything which can cause an increase in your tinnitus is potentially doing more 'damage' is worth avoiding. I wear custom made musicians earplugs on occasion that I do go. It is also important to check any medications for to see if they are ototoxic (harmful to the ear) as some antibiotics are.

Sound therapy is a good option. The sound of rain is great, I have an application on my PC / Phone for when things get bad. For when things get REALLY bad I have some hearing aids which play white noise into my ears to try and mask the ringing. You can get these and a sound machine free on the NHS.

Its worth noting that tinnitus is usually caused by hearing 'damage' usually through cumulative exposure to noise but sometimes by injury, illness or the treatment or an Acoustic tramua (such as a gunshot / firework).

The damage is usually cumulative so you never know when that temporary tinnitus you get after mowing the lawn, going to a concert, riding your motorbike or just listening to you favourite tune on you iPod could gift you permanent tinnitus. I've met all of the above when I did some work with a tinnitus charity. Then low and behold a friend of mine got it from going to gigs and festivals so I spent some time helping him come to terms with it.

I wouldn't wish it on anyone.

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1147365 Post Posted: Tue Nov 01, 2011 5:33 pm Thank this member for this postReply with quote Back To Top

blackbirdbiker Subscriber 20/03/2013 


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Pusser wrote:
I've got Menieres (not Many ears) and noise in the ear is part of the experience.

Certainly if the sound gets too bad, an aid that produces I think White Noise can bring considerable benefits. However, my noise was the precursor to balance problems and I think I prefer the noise out the two.

Music makes it worse or even constant noise like driving with the window open or even the older type of diesel engine. Wife noise can also be a prob.


Yep like you Pusser I also have menieres (although now in remission) which has left me with bad tinitus and poor hearing in my left ear, takes some living with but listening to music when in bed helps a lot, there is no cure other than learning to live with it and dont let it get you down because stress will make it worse.

Keith

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1147371 Post Posted: Tue Nov 01, 2011 5:54 pm Thank this member for this postReply with quote Back To Top

EdB Subscriber 30/08/2012 


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Although officially retired I have been an audiologist for 44 years and so have been involved with tinnitus most of this time.
As has been said there is no cure but the condition can be alleviated by distracting with other sounds. I have decided to attend a lecture given by a man I have known of for decades who will be in England next week. Look at the enclosed link which describes Zen tones it may be an answer for some people.

http://www.widex.pro/en/audiology/auralrehabilitation/zenandtinnitus/sweetowvideo/#
 
1147386 Post Posted: Tue Nov 01, 2011 6:34 pm Thank this member for this postReply with quote Back To Top

locovan Linked Subscriber 19/11/2013 


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EdB wrote:
Although officially retired I have been an audiologist for 44 years and so have been involved with tinnitus most of this time.
As has been said there is no cure but the condition can be alleviated by distracting with other sounds. I have decided to attend a lecture given by a man I have known of for decades who will be in England next week. Look at the enclosed link which describes Zen tones it may be an answer for some people.

http://www.widex.pro/en/audiology/auralrehabilitation/zenandtinnitus/sweetowvideo/#


i love this forum --you never know where the experts are
Thankyou so much for this Wink

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1147393 Post Posted: Tue Nov 01, 2011 6:50 pm Thank this member for this postReply with quote Back To Top

pneumatician Subscriber 18/07/2012 


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I notice two fellow motorcyclists have posted as suffering from Tinnitus. I have experienced it for approx 15 yrs and put it down to riding a motorcycle without earplugs plus playing with model aircraft engines and motorcycle mega exhausts. I do use plugs now, when I remember.
Living close to a high altitude flight route and on occasion Birmingham International approach, all be it still over 2K ft I sometimes cannot differentiate betwixt aircraft and my tinnitus. Just lie in bed wishing the B thing would either pass over or go away.

Steve
 
1147402 Post Posted: Tue Nov 01, 2011 7:10 pm Thank this member for this postReply with quote Back To Top

Pusser  


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[quote="blackbirdbiker"]
Pusser wrote:
I've got Menieres (not Many ears) and noise in the ear is part of the experience.Keith


I found this website helpful for Menieres simply because I found so many things that I have\had and answered so many questions.

It also reads like a Hypochondriacs wish list so very handy for me as I can choose an appropriate symptom to excuse all my failings and my God have i many.

I had of course to inform the DVLA and they investigated with the docs and I sent them this list underlining the symptoms I get. I nearly underlined all the poinst inon the symptom pages and in other symptom pages.

Luckily for me they say I am OK to drive (for the time being) as I drive so badly anyway, no one will notice the difference. (sorry. that was meant to be a joke). But it is because driving, sitting in a train of bus actually helps stop any attack and my biggest saviour is sunglasses. I wear the a lot of the time when i am out and sometimes in bed though I tend to take them off at night time on account of I cannot see where the hell i am going.

http://www.mrlexy.co.uk/menieres-disease/index.html

There is nothing special about this website I suppose but I found it the most useful for me.

Looking back I think it all started either as my bunk was under a 4.5 twin turret which went off many times while I was laying there reading and once it went off when I went outside and didn't realse they were firing until the moment I pooed myself. Very Happy
 
1149763 Post Posted: Sun Nov 06, 2011 9:40 pm Thank this member for this postReply with quote Back To Top

Hatikvah  


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I have had tinnitus for many years, it started after suffering from severe panic attacks/depression, I was so happy after recovering from the panic attacks and agraphobia and then came the tinnitus. I always have to have tv/radio in when in house alone, the only help I was given was a small pillow radio, as it seems worse at night when it is quiet , noone else can hear the radio and it does help mine is like a loud roaring noise and it does seem to get worse if I am stressed, but I have learnt to live with it and for the majority of the time I dont notice it. I dont think most people really understand it.
 Tinnitus
1149825 Post Posted: Sun Nov 06, 2011 11:22 pm Thank this member for this postReply with quote Back To Top

Myfanwy  


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Sad I have suffered this awful debilitating nuisance for many years brought on I believe by being an audio typist/secretary for 30 odd years. My entire days in the office were "plugged in" to a machine listening to endless voices.

My sympathies to all sufferers (I also endure migraines as well). Wish I had chosen a different profession when I was at school!
 
1149849 Post Posted: Mon Nov 07, 2011 12:00 am Thank this member for this postReply with quote Back To Top

bazzeruk Subscriber 06/10/2012 


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Addie wrote:
locovan wrote:

http://www.tinnitusremedies.co.uk/
http://tinnitusremedies.net/


Penquin wrote:

http://www.tinnitusformula.com/infocenter/articles/treatments/sbtt.aspx


There is a special place in hell reserved for these people (not you Locovan or Penquin - but the owners of the websites you have posted!).

They are nothing but scams, placebo effect at best. They are some of the best performing schemes on the internet because of how desperate some tinnitus sufferers become for the 'cure'. There may be some useful info but if you look closely the pages are adorned by adverts selling cures, self help books etc. Do not hand over any money for anything tinnitus related - all the best advice is free.

If you must look online stick to the British Tinnitus Association (BTA) and Action On Hearing Loss (formerly RNID).

Sufferers of tinnitus can be some of the most desperate people you will ever meet, it can invade your thoughts, sleep and every waking minute and slowly destroy you if you let it. It is something you couldn't possibly begin to understand without having experienced it for several months and I have had mine for over 10 years. My parents and grandparents love to 'sit in silence' and read. This will always be impossible for me because silence amplifys the sound 100%.

I have seen the top 2 specialists in the UK and we're only just beginning to understand the mechanism for its cause so its well before we can begin to hypothesise a cure.

Bazzer: Have you been checked over to ensure there is nothing causing your tinnitus? I had an MRI which is pretty standard. In some cases a change of diet or a reduction in stimulants (caffeine / nicotine / alcohol) can help and in others treating any depression it causes can indirectly improve your way of dealing with it. I find health wise I need to be on top of my game to fight it - as soon as it slips, it plays up.

I also avoid anywhere loud, using loud machinery, concerts etc. Anything which can cause an increase in your tinnitus is potentially doing more 'damage' is worth avoiding. I wear custom made musicians earplugs on occasion that I do go. It is also important to check any medications for to see if they are ototoxic (harmful to the ear) as some antibiotics are.

Sound therapy is a good option. The sound of rain is great, I have an application on my PC / Phone for when things get bad. For when things get REALLY bad I have some hearing aids which play white noise into my ears to try and mask the ringing. You can get these and a sound machine free on the NHS.

Its worth noting that tinnitus is usually caused by hearing 'damage' usually through cumulative exposure to noise but sometimes by injury, illness or the treatment or an Acoustic tramua (such as a gunshot / firework).

The damage is usually cumulative so you never know when that temporary tinnitus you get after mowing the lawn, going to a concert, riding your motorbike or just listening to you favourite tune on you iPod could gift you permanent tinnitus. I've met all of the above when I did some work with a tinnitus charity. Then low and behold a friend of mine got it from going to gigs and festivals so I spent some time helping him come to terms with it.

I wouldn't wish it on anyone.


Thanks Addie -

I eventually got to see a specialist after badgering my GP (now retired) who was one those who said nothing can be done - live with it. I got in touch with the BTA who put me in touch with the specialist who then wrote to my GP insisting on a refferral. She gave me the heads up on caffeine, chocolate and cheese. I was also very stressed at the time and gave up work 5 years early which has helped. It has come back with a vengeance because of a head cold, but am getting better. Thanks for trying to expose the rats who prey on this condiditon with miracle cures. I have to say even the health shop here in my home town tried it on and I was stupidly taken in - they even have a big advert in their window, whch is reallly annoying.
I wear wirleless headphones for the TV with them turned down low so my brain has to work harder to hear and that helps cut out the Tinnitus as well, but I know it is something that will always be there - but at least while it is there I am still alive!!!

Cheers

Barry
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