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So sorry to hear of your problem, but take a look at this news item from the Western Morning News of 27th May 2008. It refers to a lady I happen to know, and might be of interest. If you are already aware of the procedure to which it refers, my apologies.
Terry
Pioneering eye surgery that could save the sight of thousands of people has been carried out for the first time in the South West.
Jean Opie , 75, from Redruth, was the first woman in the Westcountry to benefit from the breakthrough procedure.
Surgeons say the GBP 6,700 operation potentially reverses the severe visual loss of dry macular degeneration, a previously untreatable disease.
The ground-breaking operation was carried out at Truro's Duchy Hospital after being developed in Italy.
Mrs Opie said: "Only people who've lost their sight can really understand how frightening it can be, especially when you've been told there's no cure.
"It sounds dramatic, but this new procedure has changed my life. I can drive again, see my friends and take part in the community activities I've always loved." While a cure has been available for the wet form of the condition, dry macular degeneration sufferers have previously been left without any hope of regaining their sight.
The condition is estimated to affect around one in 50 people over the age of 50, equating to more than 4,000 people in Cornwall and 6,000 in Devon.
A spokesman for Duchy hospital said that although many dry macular degeneration sufferers can benefit from the procedure, it is not suitable for all patients.
He added that the GBP 6,700 price tag will vary according to individual circumstances. Mrs Opie , who has been registered as partially sighted, first noticed blurred vision in her right eye in 2004, and following the diagnosis of macular degeneration, the vision in her left eye began to deteriorate.
After searching for information Mrs Opie found that surgeons in Milan had developed a procedure to insert two lenses in the eye using a healthy part of the retina to restore sight.
Mrs Opie was considering flying to Italy for the operation until she heard that Nick Wilson-Holt, consultant ophthalmic surgeon at Duchy Hospital, had already trained in the procedure.
Mr Wilson-Holt said: "The operation creates a telescope in the eye to focus light on unaffected parts of the retina.
"While it has been used successfully on hundreds of patients in Italy, this is the first time it has been performed in the South West and offers hope for many in the region who think they have an incurable disease." The operation, which is not available on the NHS, lasts around 40 minutes and is usually carried out on the eye with the better vision.
My Aunt is 83 and was diagnosed 2 years ago with wet in one and dry in the other. She is still driving but only in the local vicinity....this is to do with her confidence rather than anything else as she's been told she can still drive.
I took her to Turkey (Side) for 9 days at the beginning of the month.......enjoy your trip
My Dad had the condition when he was about 67 and over the next three years lost 95% of his vision in both eyes, He managed to go shopping for my mum and folk looked after him and were very good to him in his difficulties..
The problem became major when I lost my mum, he tried to soldier on by himself, but it was obvious to everybody but him that it couldn't go on, so he came to live with me and Sandra.
My dad didn't realise or would not admit his eyesight was going at the beginning, it was only when he pulled out of the end of his road into a car coming from the right and they collided, that he admitted he had a blind spot in the central vision area, albeit small at that stage of the condition.. But that was the end of his driving and my mum couldn't drive so they heavily relied on Sandra to take them shopping and stuff.
Just be aware of your condition and not be like my dad and try to keep on driving..
I have been checked to see if I have it, I didn't know if the condition was hereditary, luckily I haven't but they did see the start of some very small cataracts which will have to be addressed at some time. .
I don't know if this of any help to you, it is just what happened to my family.
ray.
______________________________________________________________ Damn you Autocorrect. DAMN YOU TO HE’LL.
Don Im really sorry to read this what a blow when you have had so much fun Driving everywhere.
But the thing is you have done all the travelling and have such great memories.
Diet does appear to be a great thing and everyone should change their diet to healthy but thats not easy when all the things we like is naughty.
Please keep us informed how you get on and good luck and hope it is a slow progression.
Im all for hunting for treatment and terry seems to have found one.
The trial Im on comes from Italy they seem to be really good on finding new treatment.
Trials for every ailment can be found on http://clinicaltrials.gov/
Search weekly Infact there are trials recruiting so talk to the Hospital
http://clinicaltrials.gov/ct2/results?term=AMD
À tous mes amis du forum thankyou pour toutes vos pensées agréables et avec son amour derrière moi je lutterai contre mon conflit avec un esprit de postive et le triomphe
So sorry to hear of your problem, but take a look at this news item from the Western Morning News of 27th May 2008. It refers to a lady I happen to know, and might be of interest. If you are already aware of the procedure to which it refers, my apologies.
Terry
Pioneering eye surgery that could save the sight of thousands of people has been carried out for the first time in the South West.
Jean Opie , 75, from Redruth, was the first woman in the Westcountry to benefit from the breakthrough procedure.
Surgeons say the GBP 6,700 operation potentially reverses the severe visual loss of dry macular degeneration, a previously untreatable disease.
The ground-breaking operation was carried out at Truro's Duchy Hospital after being developed in Italy.
Mrs Opie said: "Only people who've lost their sight can really understand how frightening it can be, especially when you've been told there's no cure.
"It sounds dramatic, but this new procedure has changed my life. I can drive again, see my friends and take part in the community activities I've always loved." While a cure has been available for the wet form of the condition, dry macular degeneration sufferers have previously been left without any hope of regaining their sight.
The condition is estimated to affect around one in 50 people over the age of 50, equating to more than 4,000 people in Cornwall and 6,000 in Devon.
A spokesman for Duchy hospital said that although many dry macular degeneration sufferers can benefit from the procedure, it is not suitable for all patients.
He added that the GBP 6,700 price tag will vary according to individual circumstances. Mrs Opie , who has been registered as partially sighted, first noticed blurred vision in her right eye in 2004, and following the diagnosis of macular degeneration, the vision in her left eye began to deteriorate.
After searching for information Mrs Opie found that surgeons in Milan had developed a procedure to insert two lenses in the eye using a healthy part of the retina to restore sight.
Mrs Opie was considering flying to Italy for the operation until she heard that Nick Wilson-Holt, consultant ophthalmic surgeon at Duchy Hospital, had already trained in the procedure.
Mr Wilson-Holt said: "The operation creates a telescope in the eye to focus light on unaffected parts of the retina.
"While it has been used successfully on hundreds of patients in Italy, this is the first time it has been performed in the South West and offers hope for many in the region who think they have an incurable disease." The operation, which is not available on the NHS, lasts around 40 minutes and is usually carried out on the eye with the better vision.
Hi Terry,
Thanks for that very useful info. I will certainly keep the details at hand and look into it if my sight deteriorates further.
Hi Don
You were very helpful, via the forum, to us when we were planning a trip to Cyprus in the motorhome
.
So sorry to hear that you have AMD. My mother had it, wet in one eye and dry in the other, and she managed, very well, to live independently. She had never driven though.
From memory there is something called Lutein that is supposed to slow the progress of the disease. It is a dietary supplement I believe. When I quizzed the optician about the disease she recommended eating lots of orange coloured things. Carrots, obviously, and apricots, oranges etc.
Best wishes to you and lets hope it is the cataracts that are causing you the problem.
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